The Role of Patient Advocacy and the Declining Rate of Clitoroplasty in 46,XX Patients With Congenital Adrenal Hyperplasia.
2018Clinical pediatrics
Schoer MB, Nguyen PN, Merritt DF, Wesevich VG, Hollander AS
Plain English
The study looked at how the rate of a surgery called clitoroplasty, which is used to change the appearance of the clitoris in babies with a condition called congenital adrenal hyperplasia, has changed over time. Researchers examined records from 45 patients born between 1979 and 2013 and found that 67.5% had the surgery before, but this rate has been decreasing due to input from patient advocates. This is important because it shows how listening to patients can lead to better medical practices that prioritize their needs and feelings.
Who this helps: This helps patients and their families by promoting more thoughtful and less invasive treatment options.